On April 2 to celebrate the world of autism. One caveat is important for the health of the world. Melly Budhiman, Chairman of the Foundation for Autism Indonesia (YAI), said that autism has now become a worldwide pandemic, including in Indonesia. Since he was practicing as a psychiatrist from 1976 until the 1980s, autism patients who come to him only three to five per year. Now, three new patients per day, it was because he limits the patient receives. Otherwise it may limit new patients more. Imagine, from three per year to three per day just in the past 10 years.
According to Melly, autism in Indonesia received less attention. Whereas once it is diagnosed as autistic children to get out of the phenomenon that took many years and are very expensive. It's like a time bomb about to explode. More and more, more, more and more and eventually we will lose the next generation because children with autism from the bottom layer does not have good handling. The following interview with Melly Budhiman Faisol Riza.
The data that appears in several media mentions that in 1987 the ratio of the number of people with autism is 1: 5,000. In 2007, according to a report in the U.S. Center for Disease Control has a ratio of 1:150 autism (among 150 children, one child with autism). While in the UK alone is mentioned ratio is 1:100. Of data that has appeared in several media look higher and higher people with autism. What is autism?
Autism is not a disease so do not be called a person or persons because it carried a lifetime. Autism is a developmental disorder. The difference with the disease if the disease is no virus, no bacteria, no mushrooms. While there is no autism. So there is no cure as well.
What are the symptoms?
Symptoms is a developmental disorder that involves the development of two-way communication and reciprocal social interaction, and behavior. The number one look is this child could not speak. Although it is time to speak still can not talk. That's what usually brings parents to the doctor. Why my child is 2.5 years old can not talk? If doctors know it will immediately alert and check the others. But if doctors do not understand is sometimes underestimated, as saying, "It's okay, normal boys were talking late, my nephew was four years old can only speak as well have become professor now." So parents complacent. The difference between children with autism and not if the child is late to talk just then he will try to communicate with language Tarzan. So he delayed verbal communication. But he tried to nonverbally communicate with facial expressions, the gestures. While children with autism do not.
What are the symptoms that usually appear in the behavior?
His behavior looks very strange. He did strange things over and over again. For example, he often spins in circles, he is often around a round object and thrilled. If it is successful then jumped up and down flapping his hands. Then there is also love to sit in a corner, or just play sand, or there is an excitement around the water, and there is a continued push back and forth.
What's the difference with Down syndrome, mentally retarded or handicapped?
Very different dong. If it's down syndrome chromosomal abnormality. Chromosome at conception there is a naughty, perverted. Maternal chromosomes should be split in two, his father also cut in half then each chromosome stick together like the numbers 1, 2, 3, and so on. There is a mischievous one, instead of sticking in the chromosomes themselves, in numbers alone, but he stuck to another chromosome perverted.
What are the symptoms the same?
No, that's the whole body of the chromosome abnormality had no chromosomal abnormalities, and abnormalities of chromosomes is always accompanied by mental retardation. Thus his IQ is less. Then there are the physical characteristics. For example, Down's Syndrome called Mongoloid physical characteristics, because his face like the Mongols. Upward slanting eyes, flat nose, and so forth. All the nations that have the same face down syndrome.
Is that a smart child with autism could be higher IQs than other children?
Can. If autism were no chromosomal abnormalities, but there is a genetic weakness. Genetic predisposition exists. However, there must be a genetic predisposition that is inherited by the father and mother. Not one. So inherent genetic weakness. But even though we carry a genetic weakness that no negative effects of environmental exposure, symptoms of autism may not blaze.
What is the cause of the environment?
For example, chemical toxins. Now there is a child of food preservatives, flavorings, colorings, it's all toxic chemicals. Later at home spraying people wearing mosquito repellent. If the drug can kill a mosquito, what it is not toxic for humans? Also the use of chemical that is too much, then exposure to air pollution. Our air polluted by the world's third behind China and India. So our children breathe air containing heavy metals such as mercury, cadmium, plumbum (lead). Other children also breathe in but they do not autism, while children with autism because there is a genetic weakness.
In which the body normally exposed to the effects of pollution?
In the brain. That which then tells the body so it does not develop. But the theory now is that instead of abnormalities in the brain alone, but he was also suffering from a disorder that affects the brain work. If you are in the body to be treated so well, so that the brain will also be healed so that autism can be improved.
That the community can find and detect early, what they should do from the beginning?
To detect early to know when symptoms began to arise. Onset of symptoms under the age of three years. But some had been there since birth. Some had a normal pregnancy, normal birth, developed normally, but at the age of 1.5 to 2 years suddenly stops growing, then retreated, and emerging symptoms of autism. When children are born with symptoms that had brought, for example, pregnant women exposed to rubella, measles, herpes, and so forth. At the time of the first four months of pregnancy can affect brain development. His son was born with no symptoms of autism. His son seemed unresponsive, face-to-eye since childhood did not exist. Quipped when asked by his mother unresponsive, indifferent. Not looking for mother's voice. It already looks. The higher the visible. But if the child had developed normally and then withdraw, it is more clear. For example, was able to talk but I can not anymore, now a hyper, be cool. Well, the child should be taken to the doctor.
People used to think of autism only affects certain groups, known only in town long enough, maybe the rich who get it checked out due to costly. What does such an image?
Maybe so, because in most cases the children examined only the rich. If poor people are not taken to the doctor. But the proof of my patients now from all groups. Seller of his meatballs, newspapers, bicycle repair, maid, security guard. So from all classes. There is also an oma-opanya professors, graduate parents but children with autism. Also does not recognize ethnic, subject to all ethnicities in Indonesia. Then people do not know, a lot of autism in Africa, in India many, many in Qatar, the United States too much. Anyway, now that a worldwide pandemic.
Is this actually from the old days there, or indeed the last few decades have become widely known?
From the first there but a little. For example, I have practiced as a child psychiatrist from 1976. Since then until the 1980's, autism patients who come to me maybe three to five per year, so I remember very well because it is rarely the case. Now, three new patients per day, it was because my limit. If I do not limit it may be more new patients. Imagine, from three per year to three per day just in the past 10 years.
Whether or not other types of autism? That is, the spectrum can vary because the tendency can vary. Are there certain types that are differentiated by medical science?
Actually, no. Autism is actually a medical term invantil was shortened to autism, then shortened again by the clouds become autistic. Then said spectrum disorder as well as broad spectrum. That is the broad spectrum of symptoms are very varied. Some are hyperactive, some are hipoaktif, nobody likes to attack, no one likes to hurt yourself, there are smart, some are stupid. The symptoms are very varied. Because it is said to be a very broad spectrum.
Is actually be cured in quotation marks?
Now said to be. Depending on what is called cured it. If recovery means he's good at communicating with others, he was able to socialize, its behavior is not funny anymore, much has been recovered in quotation marks.
How can therapy that has been created for people with autism?
Therapy should be very, very intensive, very comprehensive, and all sorts. First, they can not speak it must get speech therapy. Then the funny thing is this child a strong muscle. So you can run and hit people when not playing hard. But was told to hold a pencil, hands limp. So it seems to have no power. Smooth muscles so they have unskilled occupational therapy mandapatkan to flex the muscles soft and prepared in order to hold a pencil, could write, and so forth. In addition, because they have a strange behavior, it must be behavior therapy. So unusual behavior is eliminated, replaced with a reasonable behavior. That is from the outside. Then there is also a balance is not good or there is interference senses. Now it needs to be treated well, his name is sensory integration therapy. Told to degenerate in sliding, diglondongin in a big ball, rocked, and so forth. Therapies that from the outside.
Of the body itself must also be treated, look for the lab or blood check whether the child has an allergic disorder or not? Most of them have so many food allergies. If caught, get rid of. Then the hair was examined, whether the child is heavy metal poisoning or not? If poisoning detox or weight of metal removed. These kids are bad digestion. If we are careful to ask their parents, "Mom, how the pattern of digestion?" The answer, "That's dock, five days a completely new back-pringkil pringkil like gravel. Then it smells wonderful. "So bad digestion. If checked, a lot of mold and bacteria in the intestines, and it is chronic for years.
How long does a child's age can be observed but over a certain age are free to autism?
Oh, no forecaster who can predict when he will be free. Anyway, this one a speedy recovery in quotes, that one does not heal up great. So varied, each case is unique, we can not generalize. Often parents ask, "Mom doctors, how many years about recovery?" Loh, which knows, we are not psychic.
Is the treatment of children with autism can be done by the family as well?
If family therapy may also want to do. In this case the child is actually well understood. If the treatment center, according to her teacher. However, when therapy is done by the parents at home, he did not want to like know who should be obeyed. So the difficulty parents unless very firm, very consistent in discipline so that the child be under. I have a friend whose child with autism. Then he said, "As a boy, I think I like this tuh". Asked, "How come, and now a scholar?" Answered, "Yes, my father was a soldier so do not tolerate the weird behavior. I was slapped and I'm afraid, not daring to behave like that ". Tuh recovered. But I do not recommend that slapping a child.
Regarding the Autism Foundation of Indonesia (YAI), the foundation was seriously address and observe cases of autism in Indonesia. What are your expectations as chairman of the government in this case?
Once diagnosed as autistic children to get out of the symptoms then it takes many years and are very expensive. Any type of therapy that I mentioned earlier is expensive and costs are calculated per hour, for example, Rp 50,000 per hour. Does it cost each person could reach the bottom layer? So I expect the government set up free schools with a trained therapist and the therapist free. So for a group that is very, very down to bring her therapy. Where possible and where the money if the salary is Rp 400.0000 month ordered to pay Rp 50,000 sejamnya therapy. Then vitamin and medicine are also very expensive, also needs a doctor when sick, and so forth. We hope we have the autism center, diagnostic center, teraphist center, information center, research center. If that's all diongkosi by the government, well pleased.
This is probably now the government is busy with bird flu.
That's because the bird flu fatal. While autism is not considered fatal, so it received less attention. But this is like a time bomb that would explode. More and more, more, more and more and eventually we will lose the next generation because children with autism from the lower layers of society do not have good handling. Now I do not know how many people with autism, whether 1:250, 1:200, 1:150. I do not know. Have never done a survey of the large number of children with autism in Indonesia. That's because such a census must be done so expensive. Once we've determined, willing to work ok autism foundation conducted the survey from any levy money. We then make a proposal and calculate the cost to record a survey of children with autism in five regions of Jakarta membutukan USD 900 million. Nobody wants to give money to USD 900 million, so we did not.
What has been conducted by the Ministry of Health for autism?
May not occurred to it because as I said earlier, in Indonesia it's still a great many more diseases that can be fatal. So the cases of autism are considered to be fatal less attention. But as I said this was a time bomb because the amount is higher.
If the reader to see their children have early symptoms of autism, where they should look for information first, especially in the area?
Preliminary information can open www.autisme.or.id YAI website. There were a lot of information and there is a column that can contact us for questions and answers. So anything they ask will be answered.
Is there hotlinenya if they want direct communication?
Yet, because the human resources (HR) YAI least once because of this charity, so all the people who were there not being paid. Everyone at YAI, a busy person. So we are desperately short of human resources.
We return to the issue of autism. I want a little, especially specifics about the cause. What should be avoided, especially for parents who have some background of the family history of autism in order to prevent their children from autism?
That's an excellent question, we happened to autism expo will hold 26 to 27 April 2008 in the building Sucofindo. May the health minister would open it. There was Bazzar, autistic children exhibit, and then filled children's show that has begun to recover. After the seminar continued rolling. One that will be discussed is how to minimize the risk in subsequent pregnancies after the first child diagnosed with autism as a child. So all will be discussed there, including the development of the fetal brain, where the danger, and so forth.
So this very complex problem of autism. What hospitals in Jakarta that could be a reference?
In the existing RSCM on the growth and development of clinical child psychiatry. There is also the Brass RS MMC, RS Omni Medical Center, RS Pondok Indah, RS Fatmawati. So many big hospitals that already have a clinic where growth can be detected the symptoms of autism early.
What is your message to the reader to avoid the early symptoms of autism?
Recognize early autism. If no symptoms are treated quickly and do not delay. Do not view might be able to talk after four years, do so. When viewing any early symptoms should be addressed as early as possible when it's handled can still return to a normal developmental path.
According to Melly, autism in Indonesia received less attention. Whereas once it is diagnosed as autistic children to get out of the phenomenon that took many years and are very expensive. It's like a time bomb about to explode. More and more, more, more and more and eventually we will lose the next generation because children with autism from the bottom layer does not have good handling. The following interview with Melly Budhiman Faisol Riza.
The data that appears in several media mentions that in 1987 the ratio of the number of people with autism is 1: 5,000. In 2007, according to a report in the U.S. Center for Disease Control has a ratio of 1:150 autism (among 150 children, one child with autism). While in the UK alone is mentioned ratio is 1:100. Of data that has appeared in several media look higher and higher people with autism. What is autism?
Autism is not a disease so do not be called a person or persons because it carried a lifetime. Autism is a developmental disorder. The difference with the disease if the disease is no virus, no bacteria, no mushrooms. While there is no autism. So there is no cure as well.
What are the symptoms?
Symptoms is a developmental disorder that involves the development of two-way communication and reciprocal social interaction, and behavior. The number one look is this child could not speak. Although it is time to speak still can not talk. That's what usually brings parents to the doctor. Why my child is 2.5 years old can not talk? If doctors know it will immediately alert and check the others. But if doctors do not understand is sometimes underestimated, as saying, "It's okay, normal boys were talking late, my nephew was four years old can only speak as well have become professor now." So parents complacent. The difference between children with autism and not if the child is late to talk just then he will try to communicate with language Tarzan. So he delayed verbal communication. But he tried to nonverbally communicate with facial expressions, the gestures. While children with autism do not.
What are the symptoms that usually appear in the behavior?
His behavior looks very strange. He did strange things over and over again. For example, he often spins in circles, he is often around a round object and thrilled. If it is successful then jumped up and down flapping his hands. Then there is also love to sit in a corner, or just play sand, or there is an excitement around the water, and there is a continued push back and forth.
What's the difference with Down syndrome, mentally retarded or handicapped?
Very different dong. If it's down syndrome chromosomal abnormality. Chromosome at conception there is a naughty, perverted. Maternal chromosomes should be split in two, his father also cut in half then each chromosome stick together like the numbers 1, 2, 3, and so on. There is a mischievous one, instead of sticking in the chromosomes themselves, in numbers alone, but he stuck to another chromosome perverted.
What are the symptoms the same?
No, that's the whole body of the chromosome abnormality had no chromosomal abnormalities, and abnormalities of chromosomes is always accompanied by mental retardation. Thus his IQ is less. Then there are the physical characteristics. For example, Down's Syndrome called Mongoloid physical characteristics, because his face like the Mongols. Upward slanting eyes, flat nose, and so forth. All the nations that have the same face down syndrome.
Is that a smart child with autism could be higher IQs than other children?
Can. If autism were no chromosomal abnormalities, but there is a genetic weakness. Genetic predisposition exists. However, there must be a genetic predisposition that is inherited by the father and mother. Not one. So inherent genetic weakness. But even though we carry a genetic weakness that no negative effects of environmental exposure, symptoms of autism may not blaze.
What is the cause of the environment?
For example, chemical toxins. Now there is a child of food preservatives, flavorings, colorings, it's all toxic chemicals. Later at home spraying people wearing mosquito repellent. If the drug can kill a mosquito, what it is not toxic for humans? Also the use of chemical that is too much, then exposure to air pollution. Our air polluted by the world's third behind China and India. So our children breathe air containing heavy metals such as mercury, cadmium, plumbum (lead). Other children also breathe in but they do not autism, while children with autism because there is a genetic weakness.
In which the body normally exposed to the effects of pollution?
In the brain. That which then tells the body so it does not develop. But the theory now is that instead of abnormalities in the brain alone, but he was also suffering from a disorder that affects the brain work. If you are in the body to be treated so well, so that the brain will also be healed so that autism can be improved.
That the community can find and detect early, what they should do from the beginning?
To detect early to know when symptoms began to arise. Onset of symptoms under the age of three years. But some had been there since birth. Some had a normal pregnancy, normal birth, developed normally, but at the age of 1.5 to 2 years suddenly stops growing, then retreated, and emerging symptoms of autism. When children are born with symptoms that had brought, for example, pregnant women exposed to rubella, measles, herpes, and so forth. At the time of the first four months of pregnancy can affect brain development. His son was born with no symptoms of autism. His son seemed unresponsive, face-to-eye since childhood did not exist. Quipped when asked by his mother unresponsive, indifferent. Not looking for mother's voice. It already looks. The higher the visible. But if the child had developed normally and then withdraw, it is more clear. For example, was able to talk but I can not anymore, now a hyper, be cool. Well, the child should be taken to the doctor.
People used to think of autism only affects certain groups, known only in town long enough, maybe the rich who get it checked out due to costly. What does such an image?
Maybe so, because in most cases the children examined only the rich. If poor people are not taken to the doctor. But the proof of my patients now from all groups. Seller of his meatballs, newspapers, bicycle repair, maid, security guard. So from all classes. There is also an oma-opanya professors, graduate parents but children with autism. Also does not recognize ethnic, subject to all ethnicities in Indonesia. Then people do not know, a lot of autism in Africa, in India many, many in Qatar, the United States too much. Anyway, now that a worldwide pandemic.
Is this actually from the old days there, or indeed the last few decades have become widely known?
From the first there but a little. For example, I have practiced as a child psychiatrist from 1976. Since then until the 1980's, autism patients who come to me maybe three to five per year, so I remember very well because it is rarely the case. Now, three new patients per day, it was because my limit. If I do not limit it may be more new patients. Imagine, from three per year to three per day just in the past 10 years.
Whether or not other types of autism? That is, the spectrum can vary because the tendency can vary. Are there certain types that are differentiated by medical science?
Actually, no. Autism is actually a medical term invantil was shortened to autism, then shortened again by the clouds become autistic. Then said spectrum disorder as well as broad spectrum. That is the broad spectrum of symptoms are very varied. Some are hyperactive, some are hipoaktif, nobody likes to attack, no one likes to hurt yourself, there are smart, some are stupid. The symptoms are very varied. Because it is said to be a very broad spectrum.
Is actually be cured in quotation marks?
Now said to be. Depending on what is called cured it. If recovery means he's good at communicating with others, he was able to socialize, its behavior is not funny anymore, much has been recovered in quotation marks.
How can therapy that has been created for people with autism?
Therapy should be very, very intensive, very comprehensive, and all sorts. First, they can not speak it must get speech therapy. Then the funny thing is this child a strong muscle. So you can run and hit people when not playing hard. But was told to hold a pencil, hands limp. So it seems to have no power. Smooth muscles so they have unskilled occupational therapy mandapatkan to flex the muscles soft and prepared in order to hold a pencil, could write, and so forth. In addition, because they have a strange behavior, it must be behavior therapy. So unusual behavior is eliminated, replaced with a reasonable behavior. That is from the outside. Then there is also a balance is not good or there is interference senses. Now it needs to be treated well, his name is sensory integration therapy. Told to degenerate in sliding, diglondongin in a big ball, rocked, and so forth. Therapies that from the outside.
Of the body itself must also be treated, look for the lab or blood check whether the child has an allergic disorder or not? Most of them have so many food allergies. If caught, get rid of. Then the hair was examined, whether the child is heavy metal poisoning or not? If poisoning detox or weight of metal removed. These kids are bad digestion. If we are careful to ask their parents, "Mom, how the pattern of digestion?" The answer, "That's dock, five days a completely new back-pringkil pringkil like gravel. Then it smells wonderful. "So bad digestion. If checked, a lot of mold and bacteria in the intestines, and it is chronic for years.
How long does a child's age can be observed but over a certain age are free to autism?
Oh, no forecaster who can predict when he will be free. Anyway, this one a speedy recovery in quotes, that one does not heal up great. So varied, each case is unique, we can not generalize. Often parents ask, "Mom doctors, how many years about recovery?" Loh, which knows, we are not psychic.
Is the treatment of children with autism can be done by the family as well?
If family therapy may also want to do. In this case the child is actually well understood. If the treatment center, according to her teacher. However, when therapy is done by the parents at home, he did not want to like know who should be obeyed. So the difficulty parents unless very firm, very consistent in discipline so that the child be under. I have a friend whose child with autism. Then he said, "As a boy, I think I like this tuh". Asked, "How come, and now a scholar?" Answered, "Yes, my father was a soldier so do not tolerate the weird behavior. I was slapped and I'm afraid, not daring to behave like that ". Tuh recovered. But I do not recommend that slapping a child.
Regarding the Autism Foundation of Indonesia (YAI), the foundation was seriously address and observe cases of autism in Indonesia. What are your expectations as chairman of the government in this case?
Once diagnosed as autistic children to get out of the symptoms then it takes many years and are very expensive. Any type of therapy that I mentioned earlier is expensive and costs are calculated per hour, for example, Rp 50,000 per hour. Does it cost each person could reach the bottom layer? So I expect the government set up free schools with a trained therapist and the therapist free. So for a group that is very, very down to bring her therapy. Where possible and where the money if the salary is Rp 400.0000 month ordered to pay Rp 50,000 sejamnya therapy. Then vitamin and medicine are also very expensive, also needs a doctor when sick, and so forth. We hope we have the autism center, diagnostic center, teraphist center, information center, research center. If that's all diongkosi by the government, well pleased.
This is probably now the government is busy with bird flu.
That's because the bird flu fatal. While autism is not considered fatal, so it received less attention. But this is like a time bomb that would explode. More and more, more, more and more and eventually we will lose the next generation because children with autism from the lower layers of society do not have good handling. Now I do not know how many people with autism, whether 1:250, 1:200, 1:150. I do not know. Have never done a survey of the large number of children with autism in Indonesia. That's because such a census must be done so expensive. Once we've determined, willing to work ok autism foundation conducted the survey from any levy money. We then make a proposal and calculate the cost to record a survey of children with autism in five regions of Jakarta membutukan USD 900 million. Nobody wants to give money to USD 900 million, so we did not.
What has been conducted by the Ministry of Health for autism?
May not occurred to it because as I said earlier, in Indonesia it's still a great many more diseases that can be fatal. So the cases of autism are considered to be fatal less attention. But as I said this was a time bomb because the amount is higher.
If the reader to see their children have early symptoms of autism, where they should look for information first, especially in the area?
Preliminary information can open www.autisme.or.id YAI website. There were a lot of information and there is a column that can contact us for questions and answers. So anything they ask will be answered.
Is there hotlinenya if they want direct communication?
Yet, because the human resources (HR) YAI least once because of this charity, so all the people who were there not being paid. Everyone at YAI, a busy person. So we are desperately short of human resources.
We return to the issue of autism. I want a little, especially specifics about the cause. What should be avoided, especially for parents who have some background of the family history of autism in order to prevent their children from autism?
That's an excellent question, we happened to autism expo will hold 26 to 27 April 2008 in the building Sucofindo. May the health minister would open it. There was Bazzar, autistic children exhibit, and then filled children's show that has begun to recover. After the seminar continued rolling. One that will be discussed is how to minimize the risk in subsequent pregnancies after the first child diagnosed with autism as a child. So all will be discussed there, including the development of the fetal brain, where the danger, and so forth.
So this very complex problem of autism. What hospitals in Jakarta that could be a reference?
In the existing RSCM on the growth and development of clinical child psychiatry. There is also the Brass RS MMC, RS Omni Medical Center, RS Pondok Indah, RS Fatmawati. So many big hospitals that already have a clinic where growth can be detected the symptoms of autism early.
What is your message to the reader to avoid the early symptoms of autism?
Recognize early autism. If no symptoms are treated quickly and do not delay. Do not view might be able to talk after four years, do so. When viewing any early symptoms should be addressed as early as possible when it's handled can still return to a normal developmental path.
{ 0 comments... read them below or add one }
Post a Comment